Here you go. Last year's AGM transcript courtesy of imtesty.

"Originally they were only going to stay on for two years, but all patients interviewed wanted to stay on longer, so I think that’s a pretty good sign. So some of these patients have been on almost three years now."

There is some ambiguity there that could lead some to think it was patient initiated. Most likely the trial protocol was amended to allow >104 weeks dosing and then during the interview patients were asked if they would like to continue past 104 weeks if given the chance. Patient approved, not patient initiated.

BDAZ